You may have noticed signs
posted at eateries, “Inform the server if you have food allergies,” the bold
fonts listing common allergens below the ingredients’ labels, and cautionary
statements on packaging such as, “This product may contain traces of peanut,
tree nuts and soy.” Perhaps you have had
to read these labels because of school and/or camp restrictions on foods from
home. For families with food allergies,
these are daily, required reading assignments to keep their child(ren)
safe. Families with newly discovered
food allergies have many questions. They
can feel overwhelmed and terrified, wondering what to feed
their child, how to be an advocate, and how to deal with social situations
involving food, and so forth. So what
can you do? You can become well-educated
about food allergies to keep all kids healthy, happy and safe.
The Parents of Children with
Food Allergies, a support group affiliated with Parent Talk, was created about
5 years ago with the goal of helping families deal with food allergies in
everyday life. Currently, there are more
than thirty (30) families in the group, with a range of children’s ages from newborn to preteen, and more join their
membership every month. This group meets
regularly and shares life experiences -- doctor recommendations, recipes,
school and camp options, travel/resort tips, party and play date advice, dining
experiences, and so forth. If
requested, parents new to food allergies can be paired up with a family
experienced in dealing with similar allergies.
We
asked the group, “What do you, as parents of food allergic kids, wish that
other parents knew?” There were many
responses, with the most common being the feeling of huge appreciation for the
friends and family in their lives who make it a priority to be supportive and
educated. In addition, there were a few
repeating responses concerning common social situations that we have paraphrased
below:
1.
Willingness to use an Epi-Pen Injector: “As my child gets older, there will be play
dates at other kid’s houses without me.
There will even be sleepovers. I
am going to do my utmost to make it easy and safe. But in the end, you are taking responsibility
for my child.” For our kids, there must
be an adult at that social situation willing to learn how to administer an
Epi-Pen Injector, and call 911 if an emergency arises. If the adult isn’t comfortable with needles
or using the Epi-Pen Injector, it’s really important to admit it. Honestly, we appreciate your honesty! We’ll work with you to find other ways to
have safe play dates.
2.
At Social Gatherings like Birthday Parties: Parents of children with food allergies will
call or email prior to the social gatherings, letting you know that their
child(ren) have food allergies. They let
you know, “I will bring their Epi-Pen Injector and a special ‘treat’ and/or
safe snack to eat in place of whatever is being provided. I’ll teach you how to use the Epi-Pen
Injector or stay for the celebration.”
When you get these calls, please don’t take offense or feel that you
should offer to find/bake an allergen-free treat. We, and our children, are calling ahead and
bringing safe snacks because we want the focus of the party to be on your
birthday boy/girl. It is your child’s
moment “to shine.” By providing a treat
that we absolutely know is safe assures that everyone’s memories of the party
will be about the party and your child, not about our children going by
ambulance to the Emergency Room.
3. It’s Emotional as well as Physical: Food allergies
aren’t just a physical issue, but they can cause emotional issues for children.
Please be sensitive. This is most likely a lifelong condition. As one family
put it, people shouldn't ask, “Oh dear, but he/she will grow out of it, right?”
in front of the child. It’s rare for
food allergies to be outgrown, and children need to accept their limitations,
while not feeling diminished because of them.
But please, don’t hesitate to ask parents privately about their child’s
food allergies. Parents of children with
food allergies willingly answer questions, because the more people learn about
food allergies, then the safer the world becomes for their children. As the saying goes, knowledge is power.
4. Be like everyone else – be described as
something else first: Children with food allergies do not
want is to be defined or labeled by their food allergies. You
know Little Johnny, he’s the food allergy kid. Their parents want their children to have as
typical a childhood as possible, for their children to be safe, yet enjoyed and
befriended for their personalities.
The number of children being born with food
allergies, or who develop food allergies later in childhood, grows every
day. For great more great information
about food allergies and how you can help, please visit www.foodallergy.org and www.asthmaandallergies.org.
Christine Burns lives in the Boston area with her husband and their three children. A former teacher, she earned a B.A. in English eons ago from Colby College, as well as a M.A. from Simmons College and a M.Ed. from Lesley University. She is an active member of Parents of Children with Food Allergies.
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